
Profiles
Dr Rohit Shankar
Professor of Neuropsychiatry
Peninsula Medical School (Faculty of Health)
Biography
Biography
Rohit is a professor in Neuropsychiatry with University of Plymouth Medical School and director of its Cornwall Intellectual Disability Equitable Research (CIDER) unit https://www.plymouth.ac.uk/research/cider-cornwall-intellectual-disability-equitable-research. Awarded an MBE (2018) for services to the learning disability community he has national/international awards including the BMJ awards for mental health (2020), Education (2019) Neurology (2016), Innovation (highly commended-2017), ILAE Epileptic Disorders best paper (2017) and Epilepsy Foundation America SUDEP Challenge (2016). He has over 150 index-linked publications/ book-chapters and led/contributed to various national reports. Publications are on https://orcid.org/0000-0002-1183-6933
He is a Consultant in developmental Neuropsychiatry & Clinical Director at Cornwall Partnership NHS FT, Associate Professor (Hon.) at University of Exeter Medical School, Hon. Fellow Falmouth University (2019 –current)and chair of the SW RCPsych division. His interests are in co-producing translational clinical research in neurodevelopmental/neuropsychiatric disorders, clinical risk management, and use of implementation science for health technology.
Qualifications
MBBS, FRCPsych
Professional membership
Royal College of Psychiatrists
Royal Society of Medicine
British Medical Association
British Neuro-psychiatric association
International League against Epilepsy
Roles on external bodies
Editorial Board member – Advances in Mental Health and Intellectual Disabilities (2018 – current)
Deputy Research and governance Director – CFT (2010 – current)
Project management expert for the UK Epilepsy Deaths Register – SUDEP Action (2013 –current)
Editorial Advisory Board for Neuropsychiatry: Progress in Neurology and Psychiatry Journal (2015 – current)
NICE committee member for update on Epilepsy guidance (2019 – current)
RCPsych expert cannabis reference committee (2019 – current)
Advisory committee member National Confidential Enquiry into Patient Outcome and Death (NCEPOD) (2020 –current)
Council member – Royal Society of Medicine (ID division) (2020 –current)
RCPsych international HONOS-LD update committee member (2020 – current)
Previous:
Senior Clinical Lecturer & Hon. Clinical Associate Professor – Exeter Medical School (2013 -2020)
Academic Secretary – RCPsych ID faculty (2018 – 2020)
National executive committee member – ID Faculty RCPsych (2016 – 2020)
RCPsych ID Faculty National epilepsy strategy working committee chair (2016 – 2020) NHS England Optimum clinical pathway for epilepsy committee (2018-2019)
NHS RightCare Epilepsy Toolkit development group (2018-2019)
RCPsych Neuroscience implementation executive group member (2016 –2019)
ILAE UK Working group on services for adults with Intellectual Disability and Epilepsy (2016 – 2017)
Member of the Health Service Research Board – National Institute of Health Research (R&D initiative) (2012 – 2016)
Training programme Director for learning Disability – South West Deanery (2010 -2013)
Innovations lead – Royal College of Psychiatrists, South West Division (2013 – 2020)
Continued Professional Development Chair – CFT (2010 – 2015)
Lead Consultant for Adult Intellectual Disability – CFT (2014- 2015) Specialist Registrar (July 2006 - June 2009)
Research
Research
Research interests
Professor Shankar is the director of CIDER https://www.plymouth.ac.uk/research/cider-cornwall-intellectual-disability-equitable-research
1. 2020- “Brain in Hand” implementation research study
2. 2020 -COVID risk stratification in people with ID
3. 2019 - Computational Decision Support in Epilepsy using retrospective EEG (IRAS 260729, CPMS 43554) (NIHR adopted)
4. 2018 – Autism & LEV – explorative study using the Ep-ID Register to map characteristics
5. 2018 – Turning the tide – identifying factors for preventing admission of people with ID
6. 2018 - Identifying & treating People with Epilepsy accessing ED regularly but not in specialist care (adopted NIHR Portfolio)
7. 2018 -Epilepsy and Behaviour project – attitudes of professionals to behavioural changes in epilepsy
8. 2017 -2018 - PIXIE study - The Peninsula study exploring genomic stratification in intellectual disability- With Professor Jonathan Mill setting up a Bio tissue bank for genetic analysis looking at populations of people with ID and Dementia/epilepsy/autism – Sponsored by Exeter Medical School
9. 2014 - 2024 – A Register for New Anti-Epileptic Drugs In ID/PDD populations 10 years ethics approval (Ethics reference: 14/SC/1270) Adopted by UK NIHR (study number: 31484).
10. 2016 – Retrospective real world study to describe the use of Epistatus® in routine practice in the UK.
11. 2015 - CLEMATIS BP27832 26 week phase two trial of a molecule to help memory in people with Down’s syndrome – recruited both UK participants for this study
12. 2013 - Cornwall psychotropic prescribing in pregnancy Register. 10 years ethics approval
13. 2013 - Epilepsy Life project psychosocial factors influencing emergency department attendance
14. 2012 - Current Retrospective case control study looking to develop and validate a list of risk factors for counselling patients with epilepsy on Sudden Unexpected Death in Epilepsy
15. 2012 - Risk factors assessment to releasing ID patients from their secure placements
16. 2011- Comparing medical student attitudes towards Psychiatry across the globe
17. 2011- Multicentre international study of elderly depression in general hospital settings
Grants & contracts
2014 -2024 – £308,489/- UK Ep-ID Register (NIHR adopted) funded unconditionally by various drug companies and charities
February 2021 - £25,000/- NHS England – exploratory analysis of CPRD to identify risk factors for premature mortality for autism
October 2020 - £150,000/- ERUK co-applicant to pilot the SUDEP & Seizure Checklist
August 2020 – £764,000/- SBRI phase 2 - “Brain in Hand” – co-applicant, research and clinical lead
August 2020 – £865,000/- NIHR AI grant to test Bio-Ep – co-applicant and clinical lead
August 2020 - £22,153/- Captain Tom NHS Charity fund – COVID risk stratification in people with ID
June 2020 - £85,000/- GW Pharma to extend the UK Ep-ID Register to 2-18 year group
January 2020 - £1,138,000/- EU satellite Agency (co-applicant) technology in clinical care
November 2019 –£151,199/- NIHR RfPB (Co- applicant) Person centred risk communications - what works best for people with epilepsy and their clinicians
January 2019 - £20,000/- Health Education England – Stress wellbeing app for junior doctors
October 2018 - £5,000/- Feasibility grant from EPIC to develop a game for neurotic conditions
February 2018 - £45,000/- NHS England - factors influencing admission of people with ID
September 2018 - £344,138 – Innovate UK (co-applicant) BioEP: Proof of Concept
October 2017 - £101,000/- LivaNova to develop study looking at ED admission factors
September 2017 - £12,000/- Eisai study perception of challenging behaviour and mental health among different groups of epilepsy professionals
May 2017 – £20,000/- for PIXIE study – University of Exeter Medical School
March 2016 - £20,200/- Bilal to look at neuropsychiatric impact of Eslicarbazepine
February 2016 - $30,000/- (co-applicant) SUDEP Challenge Epilepsy Foundation America
August 2014/15 - £9000/- (Co-applicant) Peninsula Deanery improved teaching techniques
Publications
Publications
Key publications
Key publications are highlighted
JournalsPersonal
Personal
Other academic activities
I am the lead for the SUDEP and Seizure Safety Checklist (https://sudep.org/checklist) (2010 to present) to assess record and communicate SUDEP risk. The tool is used by epilepsy clinicians across UK and internationally (https://www.epilepsy.org.au/sudep-checklist/). It is converted to a self-empowerment mobile application – EpSMon (www.epsmon.com). Both tools have been evaluated across health & research communities. They have won the ILAE UK expert led poster 2015, patient safety awards 2016, Health Business Awards 2016, British Medical Journal awards 2016 (Neurology), 2017 * (Innovation) 2019 (Education) and US SUDEP Challenge award 2016 winner(83 applicants/25 countries). It is 1/7 projects selected by NHS England for the National Innovation accelerator programme 2017. A Cochrane review (2016 -CD011792) on SUDEP prevention singles out EpSMon. The RCGP has recommended EpSMon to all 70,000 GP practices through e-module training (2016)for epilepsy management & the BMJ commissioned a CPD module. Both Checklist & EpSMon are part of national epilepsy commissioning (http://www.epilepsytoolkit.org.uk/) and NHS RightCare toolkits. A recent NIHR review of emerging epilepsy technology has given the highest rating for EpSMon (page61). Key recent publications of 15 – https://doi.org/10.1016/j.yebeh.2019.07.020
https://doi.org/10.1016/j.yebeh.2019.106514 https://doi.org/10.1111/ene.13651 https://doi.org/10.1080/14737175.2018.1439738
I initiated, implemented and co-ordinate a monthly mental health phone in with BBC radio Cornwall (2010). It has run continuously for 9 years, delivered 105 episodes. The significant impact on local community is evidenced -
https://doi.org/10.1192/bjo.2019.51
Overprescribing/polypharmacy has been recognised to be a significant UK wide problem in people with DD (https://www.england.nhs.uk/learning-disabilities/improving-health/stomp/). An evidence based systemic approach led by me to de-prescribing is being adopted nationally and internationally. Evidence of successes and challenges – https://doi.org/10.1111/jar.12635
https://doi.org/10.1111/bld.12272 https://doi.org/10.1136/dtb.2018.000009 https://doi.org/10.1371/journal.pone.0204178 https://doi.org/10.1111/bld.12206
Do not flush your life away a public health campaign to reduce male suicides - https://www.cornwall.gov.uk/health-and-social- care/public-health-cornwall/public-health-campaigns/dont-flush-your-life-away/
I have been the lead for various national projects aimed at a holistic approach for people with DD and epilepsy. This includes identifying and mitigating the national problems, challenges in work force, resources and competency of various stakeholders involved in the care of these complex individuals. These National reports are –
https://www.rcpsych.ac.uk/improving-care/campaigning-for-better-mental-health-policy/college-reports/2017-college- reports/management-of-epilepsy-in-adults-with-intellectual-disability-cr203-may-2017 https://www.rcpsych.ac.uk/improving-care/campaigning-for-better-mental-health-policy/college-reports/2017-college- reports/prescribing-anti-epileptic-drugs-for-people-with-epilepsy-and-intellectual-disability-cr206-oct-2017 https://ilaebritish.org.uk/content/uploads/2019/06/ESNA-Midazolam-Guidelines.pdf
NHS RightCare national commissioning toolkit & NHS England national epilepsy pathway
Do not flush your life away - https://www.cornwall.gov.uk/health-and-social-care/public-health-cornwall/public-health- campaigns/dont-flush-your-life-away/ finalist for the BMJ Awards 2017.
The Purple Book - Book a tool for self-empowerment and monitoring on psychotropic and anticonvulsant medication for people with ID
I have developed a standardized 30 minute e-learning test to enable trainers across the UK to test their course attendees’ understanding of delivering good care and rescue Midazolam medication. The e-test includes videos to examine the candidate’s ability to identify the practical procedures required in Buccal Midazolam administration with the aim of ensuring the trainee has gained the necessary learning during training. The e- test was created in partnership and consultation with local, regional and national level epilepsy experts, service users, carers and charities. The website was tested for quality standards and is supported as a source to improve patient safety by our stakeholders including the JEC, the International League of Epilepsy UK chapter, SUDEP Action, Epilepsy Action, South West Epilepsy Nurses group, Peninsula Academic Health Science Network and two NHS Trusts. It was formally launched on the 17th September 2013 at the South –West Epilepsy Conference and was shortlisted for the HSJ awards 2014 and national patient safety awards 2015. This has now been adopted by Cornwall Council and reaches all Cornish registered organizations (16000 carers). This model is being looked to being adopted in other parts of the country. I am leading a collaborative of ILAE UK and ESNA to redevelop the National rescue epilepsy guidance.
I have developed a checklist to support safe transfer of patients with ID across regions to address and mitigate some of the concerns raised in the Winterbourne enquiry. This checklist has been approved by the RCPsych executive and is approved as good practice by the National LD senate.
I am a co-developer of the intervention ‘SMART CART’ which has been awarded the internationally acclaimed Medical Futures innovation award (14/06/07).
I helped conceptualize, arrange and organize the mock OSCE now CASC exam (13 continuous stations) for the Part 3 MRCPsych clinical entrants. The mock exam is bi annual and is well received. It caters to all examinees in the South-West region of UK. Places for candidates outside Cornwall are sold at nominal rates and funds generated through this help buffer the Trust CPD budget. This was awarded the Royal College of Psychiatrists (south west division) Innovation award for 2009.
I was successful in acquiring 2 separate £5000 grants from the Peninsula Deanery to help develop training DVDs. The projects have been completed successfully. The first project on CASC DVDs is a well-recognized part of the clinical exam preparation now with sales being nationally and internationally. The money from the sale of DVDs goes towards the Trust continued professional development funds for the Trust doctors. This was awarded the Royal College of Psychiatrists (south west division) Innovation award for 2011 and was ‘highly commended’ at the BMA book awards.
Our new quality of life and communication e- tool ‘Cornwall epilepsy radar’ is being piloted.
A New pathway for consent to assist GPs and easy read for female patients who have learning disability to foster informed choice and communication around oral contraceptive use and antiepileptic medication.
I have helped conceptualized mental health podcasts for GPs in Innovait (The RCGP training journal) which is now a regular monthly feature
Additional information
Awards and Notable Achievements –
1. 01/2018 – Most Excellent Order of the British Empire (MBE)
2. 10/2020 – Winner - BMJ Awards – Mental Health Team of the Year
3. 04/2019 – Winner – BMJ Awards – Education Team of the Year
4. 08/2018 - Epileptic Disorders ILAE Educational Prize (https://www.ilae.org/about-ilae/awards/epileptic-disorders- educational-prize)
5. 05/2018 – Finalist - BMJ Awards – Mental Health Category
6. 05/2017 – Highly Commended - BMJ Awards – Innovation Team of the Year
7. 05/2017 – Finalist - BMJ Awards – Mental Health Category
8. 11/2016 – Winner – Health Business Awards – Healthcare IT category
9. 11/2016 - EpSMon – peer r/w chosen by NHS England as 1 of 7 National Innovation Accelerator Fellowship
10. 11/2016 – Finalist (top 3) – South West NHS Leadership awards
11. 09/2016 - Finalist (top 3) – EHI national awards
12. 06/2016 – Winner- HSJ Patient Safety Awards - Education and Training in Patient Safety
13. 06/2016 – Winner - HSJ Patient Safety Awards – Patient Safety in Mental Health
14. 06/2016 – Finalist- HSJ Patient Safety Awards - Improving Safety in Primary Care
15. 06/2016 – Finalist- HSJ Patient Safety Awards - Managing Long-Term Conditions
16. 06/2016 – Finalist- HSJ Patient Safety Awards – Technology and IT to Improve Patient Safety
17. 05/2016 – Winner – BMJ Awards – Neurology Team of the Year
18. 04/2016 – research paper ‘safe and sound’ European Journal of Epilepsy editorial choice 03/2016
19. 03//2016 - Finalist- Health Service Journal (HSJ) Value Awards – General Medicine
20. 03/2016 – Finalist- Health Service Journal (HSJ) Value Awards –Specialist Care
21. 03/2016 - Finalist for Health service Journal (HSJ) Awards – Telehealth
22. 02/2016 – Winner – Epilepsy Foundation USA - SUDEP Challenge
23. 02/2016 - National Institute for Health and Care Research (NIHR) commercial principal investigators Award
24. 11/2015 – Finalist – Health Service Journal (HSJ) Patient Safety
25. 11/2015 – Finalist – Health Service Journal (HSJ) – Efficiency with technology
26. 09/2015 - ILAE UK – 1st prize – expert led poster presentation
27. 07/2015 – Finalist- Health Service Journal (HSJ) Patient Safety Awards -Safety in Medicines Management
28. 11/2014 - Finalist for Health service Journal (HSJ) Awards – Improved Care with Technology
29. 08/2014 - Best Poster Award – Academic Psychiatry Conference Singapore
30. 03/2014 – European Journal of Epilepsy paper in the top 5 most downloaded papers for the quarter
31. 11/2013 - Finalist for Health service Journal (HSJ) Awards – innovation with Technology category
32. 11/2013 – Finalist Royal College of Psychiatrists – Public educator of the year
33. 11/2012 - Finalist for the Health service Journal (HSJ) Awards – mental health innovations category.
34. 11/2012 - The RCPsych (south west division) Innovation award runner’s up for monthly Radio.
35. 09/2012 – Runners up - CFT Staff Recognition awards (service user nominated category)
36. 04/2012 – Finalist in the British Medical Journal (BMJ) Awards Public Communicator Category
37. 11/2011 - The RCPsych (south west division) Innovation award for the Cornish CASC DVDs
38. 09/2011 – British Medical Association (BMA) book awards – ‘highly commended’ award
39. 05/2011 – 1st prize for audit poster at the RCGP southwest Tamar annual study day
40. 11/2009 - The RCPsych (south west division) Innovation award for the Cornish CASC Project
41. 06/2007 - Medical Futures innovation international award for SMART Cart