Dr Rohit Shankar
Profiles

Dr Rohit Shankar

Professor of Neuropsychiatry

Peninsula Medical School (Faculty of Health)

Rohit is a professor in Neuropsychiatry with University of Plymouth Medical School and director of its Cornwall Intellectual Disability Equitable Research (CIDER) unit https://www.plymouth.ac.uk/research/cider-cornwall-intellectual-disability-equitable-research. Awarded an MBE (2018) for services to the learning disability community he has national/international awards including the BMJ awards for mental health (2020), Education (2019) Neurology (2016), Innovation (highly commended-2017), ILAE Epileptic Disorders best paper (2017) and Epilepsy Foundation America SUDEP Challenge (2016). He has over 150 index-linked publications/ book-chapters and led/contributed to various national reports. Publications are on https://orcid.org/0000-0002-1183-6933

He is a Consultant in developmental Neuropsychiatry & Clinical Director at Cornwall Partnership NHS FT, Associate Professor (Hon.) at University of Exeter Medical School, Hon. Fellow Falmouth University (2019 –current)and chair of the SW RCPsych division. His interests are in co-producing translational clinical research in neurodevelopmental/neuropsychiatric disorders, clinical risk management, and use of implementation science for health technology.

Qualifications

MBBS, FRCPsych

Professional membership

Royal College of Psychiatrists

Royal Society of Medicine 

British Medical Association 

British Neuro-psychiatric association

International League against Epilepsy 

Roles on external bodies

Editorial Board member – Advances in Mental Health and Intellectual Disabilities (2018 – current) 

Deputy Research and governance Director – CFT (2010 – current)

Project management expert for the UK Epilepsy Deaths Register – SUDEP Action (2013 –current)

Editorial Advisory Board for Neuropsychiatry: Progress in Neurology and Psychiatry Journal (2015 – current)

NICE committee member for update on Epilepsy guidance (2019 – current)

RCPsych expert cannabis reference committee (2019 – current)

Advisory committee member National Confidential Enquiry into Patient Outcome and Death (NCEPOD) (2020 –current)

Council member – Royal Society of Medicine (ID division) (2020 –current)

RCPsych international HONOS-LD update committee member (2020 – current)

Previous:
Senior Clinical Lecturer & Hon. Clinical Associate Professor – Exeter Medical School (2013 -2020)
Academic Secretary – RCPsych ID faculty (2018 – 2020)
National executive committee member – ID Faculty RCPsych (2016 – 2020)
RCPsych ID Faculty National epilepsy strategy working committee chair (2016 – 2020) NHS England Optimum clinical pathway for epilepsy committee (2018-2019)
NHS RightCare Epilepsy Toolkit development group (2018-2019)
RCPsych Neuroscience implementation executive group member (2016 –2019)
ILAE UK Working group on services for adults with Intellectual Disability and Epilepsy (2016 – 2017)
Member of the Health Service Research Board – National Institute of Health Research (R&D initiative) (2012 – 2016)
Training programme Director for learning Disability – South West Deanery (2010 -2013)
Innovations lead – Royal College of Psychiatrists, South West Division (2013 – 2020)
Continued Professional Development Chair – CFT (2010 – 2015)
Lead Consultant for Adult Intellectual Disability – CFT (2014- 2015) Specialist Registrar (July 2006 - June 2009)

Research interests

Professor Shankar is the director of CIDER https://www.plymouth.ac.uk/research/cider-cornwall-intellectual-disability-equitable-research 

1. 2020- “Brain in Hand” implementation research study
2. 2020 -COVID risk stratification in people with ID
3. 2019 - Computational Decision Support in Epilepsy using retrospective EEG (IRAS 260729, CPMS 43554) (NIHR adopted)
4. 2018 – Autism & LEV – explorative study using the Ep-ID Register to map characteristics
5. 2018 – Turning the tide – identifying factors for preventing admission of people with ID
6. 2018 - Identifying & treating People with Epilepsy accessing ED regularly but not in specialist care (adopted NIHR Portfolio)
7. 2018 -Epilepsy and Behaviour project – attitudes of professionals to behavioural changes in epilepsy
8. 2017 -2018 - PIXIE study - The Peninsula study exploring genomic stratification in intellectual disability- With Professor Jonathan Mill setting up a Bio tissue bank for genetic analysis looking at populations of people with ID and Dementia/epilepsy/autism – Sponsored by Exeter Medical School
9. 2014 - 2024 – A Register for New Anti-Epileptic Drugs In ID/PDD populations 10 years ethics approval (Ethics reference: 14/SC/1270) Adopted by UK NIHR (study number: 31484).
10. 2016 – Retrospective real world study to describe the use of Epistatus® in routine practice in the UK.
11. 2015 - CLEMATIS BP27832 26 week phase two trial of a molecule to help memory in people with Down’s syndrome – recruited both UK participants for this study
12. 2013 - Cornwall psychotropic prescribing in pregnancy Register. 10 years ethics approval
13. 2013 - Epilepsy Life project psychosocial factors influencing emergency department attendance
14. 2012 - Current Retrospective case control study looking to develop and validate a list of risk factors for counselling patients with epilepsy on Sudden Unexpected Death in Epilepsy
15. 2012 - Risk factors assessment to releasing ID patients from their secure placements
16. 2011- Comparing medical student attitudes towards Psychiatry across the globe
17. 2011- Multicentre international study of elderly depression in general hospital settings

Grants & contracts

2014 -2024 – £308,489/- UK Ep-ID Register (NIHR adopted) funded unconditionally by various drug companies and charities

February 2021 - £25,000/- NHS England – exploratory analysis of CPRD to identify risk factors for premature mortality for autism 

October 2020 - £150,000/- ERUK co-applicant to pilot the SUDEP & Seizure Checklist

August 2020 – £764,000/- SBRI phase 2 - “Brain in Hand” – co-applicant, research and clinical lead

August 2020 – £865,000/- NIHR AI grant to test Bio-Ep – co-applicant and clinical lead

August 2020 - £22,153/- Captain Tom NHS Charity fund – COVID risk stratification in people with ID

June 2020 - £85,000/- GW Pharma to extend the UK Ep-ID Register to 2-18 year group

January 2020 - £1,138,000/- EU satellite Agency (co-applicant) technology in clinical care

November 2019 –£151,199/- NIHR RfPB (Co- applicant) Person centred risk communications - what works best for people with epilepsy and their clinicians

 January 2019 - £20,000/- Health Education England – Stress wellbeing app for junior doctors

October 2018 - £5,000/- Feasibility grant from EPIC to develop a game for neurotic conditions

February 2018 - £45,000/- NHS England - factors influencing admission of people with ID

September 2018 - £344,138 – Innovate UK (co-applicant) BioEP: Proof of Concept

October 2017 - £101,000/- LivaNova to develop study looking at ED admission factors

September 2017 - £12,000/- Eisai study perception of challenging behaviour and mental health among different groups of epilepsy professionals

May 2017 – £20,000/- for PIXIE study – University of Exeter Medical School

March 2016 - £20,200/- Bilal to look at neuropsychiatric impact of Eslicarbazepine

February 2016 - $30,000/- (co-applicant) SUDEP Challenge Epilepsy Foundation America

August 2014/15 - £9000/- (Co-applicant) Peninsula Deanery improved teaching techniques

Key publications

Key publications are highlighted

Journals
Articles
Smith AN, Laugharne R, Oak K & Shankar R (2021) 'Eye Movement Desensitisation and Reprocessing Therapy for People with Intellectual Disability in the Treatment of Emotional Trauma and Post Traumatic Stress Disorder: A Scoping Review' Journal of Mental Health Research in Intellectual Disabilities 1-48 , DOI Open access
Jones K, Gangadharan S, Brigham P, Smith E & Shankar R (2021) 'Current practice and adaptations being made for people with autism admitted to in-patient psychiatric services across the UK' BJPsych Open 7, (3) , DOI Open access
West C, Woldman W, Oak K, McLean B & Shankar R (2021) 'A Review of Network and Computer Analysis of Epileptiform Discharge Free EEG to Characterize and Detect Epilepsy' Clinical EEG and Neuroscience 155005942110082-155005942110082 , DOI Open access
Howkins J, Wilcock M & Shankar R (2021) 'Community Monitoring of Health Parameters in People with Intellectual Disabilities Prescribed Lithium' Journal of Mental Health Research in Intellectual Disabilities 14, (2) 159-173 , DOI Open access
Davis Jones G, Stavropoulos I, Ibrahim K, Tristram M, Neale M, Jory C, Adcock J, Esposito M, Hamandi K & Shankar R (2021) 'An evaluation of the effectiveness of perampanel in people with epilepsy who have previously undergone resective surgery and/or implantation of a vagal nerve stimulator' Epilepsy & Behavior 116, 107738-107738 , DOI Open access
McCabe J, McLean B, Henley W, Harris C, Cheatle K, Ashby S & Shankar R (2021) 'Sudden Unexpected Death in Epilepsy (SUDEP) and seizure safety: Modifiable and non-modifiable risk factors differences between primary and secondary care' Epilepsy & Behavior 115, 107637-107637 , DOI Open access
Perera B, Chen J, Korb L, Borakati A, Courtenay K, Henley W, Tromans S & Shankar R (2021) 'Patterns of comorbidity and psychopharmacology in adults with intellectual disability and attention deficit hyperactivity disorder: an UK national cross-sectional audit' Expert Opinion on Pharmacotherapy 1-8 , DOI Open access
Alexander RT, Langdon PE, O'Hara J, Howell A, Lane T, Tharian R & Shankar R (2020) 'Psychiatry and neurodevelopmental disorders: experts by experience, clinical care and research' The British Journal of Psychiatry 218, (1) 1-3 , DOI Open access
Allard J, Lawthom C, Henley W, Mclean B, Hudson S, Tittensor P, Rajakulendran S, Ellawela S, Pace A & Shankar R (2020) 'Eslicarbazepine acetate response in intellectual disability population versus general population' Acta Neurologica Scandinavica 143, (3) 256-260 , DOI Open access
Tromans S, Kinney M, Chester V, Alexander R, Roy A, Sander JW, Dudson H & Shankar R (2020) 'Priority concerns for people with intellectual and developmental disabilities during the COVID-19 pandemic' BJPsych Open 6, (6) , DOI Open access
Perera B, Laugharne R, Henley W, Zabel A, Lamb K, Branford D, Courtanay K, Alexander R, Purandare K & Wijeratne A (2020) 'COVID-19 deaths in people with intellectual disability in the UK and Ireland: descriptive study' BJPsych Open 6, (6) , DOI Open access
Anderson M, Oak K, Goodey R, Dodd K & Shankar R (2020) 'Do the severity of Intellectual Disability and /or the presence of neurodevelopmental disorders influence the onset of dementia in people with Down syndrome?' Journal of Mental Health Research in Intellectual Disabilities 13, (4) 322-342 , DOI Open access
Kinney MO, Chester V, Tromans S, Alexander RT, Angus-Leppan H, Bagary M, Cock H, Devapriam J, Hassiotis A & Mula M (2020) 'Epilepsy, anti-seizure medication, intellectual disability and challenging behaviour – Everyone’s business, no one’s priority' Seizure 81, 111-116 , DOI Open access
Shankar R, Perera B & Thomas RH (2020) 'Epilepsy, an orphan disorder within the neurodevelopmental family' Journal of Neurology, Neurosurgery & Psychiatry 91, (12) 1245-1247 , DOI Open access
Watkins L, Reuber M, Perera B, Courtenay K, Banks R, Murphy E, Angus-Leppan H & Shankar R (2020) 'Valproate prescribing practices for women with intellectual disability across Europe' Acta Neurologica Scandinavica 143, (1) 56-61 , DOI Open access
Deb S, Nancarrow T, Limbu B, Sheehan R, Wilcock M, Branford D, Courtenay K, Perera B & Shankar R (2020) 'UK psychiatrists’ experience of withdrawal of antipsychotics prescribed for challenging behaviours in adults with intellectual disabilities and/or autism' BJPsych Open 6, (5) , DOI Open access
Sun JJ, Perera B, Henley W, Ashby S & Shankar R (2020) 'Seizure and Sudden Unexpected Death in Epilepsy (SUDEP) characteristics in an urban UK intellectual disability service' Seizure 80, 18-23 , DOI Open access
Miller J, Perera B & Shankar R (2020) 'Clinical guidance on pharmacotherapy for the treatment of attention-deficit hyperactivity disorder (ADHD) for people with intellectual disability' Expert Opinion on Pharmacotherapy 21, (15) 1897-1913 , DOI Open access
Boland C, Jalihal V, Organ C, Oak K, McLean B, Laugharne R, Woldman W, Beck R & Shankar R (2020) 'EEG Markers in Emotionally Unstable Personality Disorder—A Possible Outcome Measure for Neurofeedback: A Narrative Review' Clinical EEG and Neuroscience 52, (4) 254-273 , DOI Open access
Lennard S, Sharpe R, Goodey R, Hudson S & Shankar R (2020) 'Creating Capable Communities for People with Intellectual Disabilities: Challenges and Opportunities' Journal of Mental Health Research in Intellectual Disabilities 13, (3) 174-200 , DOI Open access
McCabe J, Wilcock M, Atkinson K, Laugharne R & Shankar R (2020) 'General practitioners’ and psychiatrists’ attitudes towards antidepressant withdrawal' BJPsych Open 6, (4) , DOI Open access
Allard J, Henley W, Snoeijen-Schouwenaars F, Ool J, Tan I, Jurgen Schelhaas H, Majoie MHJM, Hudson S, McLean B & Shankar R (2020) 'European perspective of perampanel response in people with Intellectual Disability' Acta Neurologica Scandinavica 142, (3) 255-259 , DOI Open access
Watkins L, O'Dwyer M, Oak K, Lawthom C, Maguire M, Thomas R & Shankar R (2020) 'The evidence for switching dibenzazepines in people with epilepsy' Acta Neurologica Scandinavica 142, (2) 121-130 , DOI Open access
Angus-Leppan H, Moghim MM, Cock H, Kinton L, Synnott Wells M & Shankar R (2020) 'Valproate risk form—Surveying 215 clinicians involving 4775 encounters' Acta Neurologica Scandinavica 141, (6) 483-490 , DOI Open access
Burrows L, Lennard S, Hudson S, McLean B, Jadav M, Henley W, Sander JW & Shankar R (2020) 'Exploring epilepsy attendance at the emergency department and interventions which may reduce unnecessary attendances: A scoping review' Seizure 76, 39-46 , DOI
Allard J, Henley W, Mclean B, Sellers A, Hudson S, Rajakulendran S, Pace A, Pashley S, Maguire M & Mohan M (2020) 'Lacosamide in the general population and in people with intellectual disability: Similar responses?' Seizure 76, 161-166 , DOI Open access
Smart C, Page G, Shankar R & Newman C (2020) 'Keep safe: The when, why and how of epilepsy risk communication' Seizure: European Journal of Epilepsy 78, 136-149 , DOI Open access
Sawhney I, Zia A, Yazdi B & Shankar R (2020) 'Awareness of bone health risks in people with epilepsy and intellectual disability' British Journal of Learning Disabilities 48, (3) 224-231 , DOI Open access
Shankar R, Ashby S, McLean B & Newman C (2020) 'Bridging the gap of risk communication and management using the SUDEP and Seizure Safety Checklist' Epilepsy & Behavior 103, 106419-106419 , DOI Open access
Newman C, Ashby S, McLean B & Shankar R (2020) 'Improving epilepsy management with EpSMon: A Templar to highlight the multifaceted challenges of incorporating digital technologies into routine clinical practice' Epilepsy & Behavior 103, 106514-106514 , DOI Open access
Niven A, Gamman L, Webb A, Goodey R & Shankar R (2020) 'Transforming care in Cornwall: A review of the quality of the lives of people with learning disabilities a decade post‐discharge from hospital' British Journal of Learning Disabilities 48, (4) 315-322 , DOI Open access
Watkins L, O’Dwyer M, Kerr M, Scheepers M, Courtenay K & Shankar R (2019) 'Quality improvement in the management of people with epilepsy and intellectual disability: the development of clinical guidance' Expert Opinion on Pharmacotherapy 21, (2) 173-181 , DOI
Sharpe RA, Curry W, Brown R & Shankar R (2019) 'A public health approach to reducing health inequalities among adults with autism' British Journal of General Practice 69, (688) 534-535 , DOI
Jory C, Oak K, Organ C, Mclean B & Shankar R (2019) 'Head first – Review of epilepsy head injury risk and protection' Seizure 71, 66-79 , DOI
Watkins L, O'Dwyer M & Shankar R (2019) 'New anti-seizure medication for elderly epileptic patients' Expert Opin Pharmacother 20, (13) 1601-1608 Author Site , DOI
Cocksedge KA, Guliani J, Henley W, Anderson T, Roberts S, Reed L, Skinnard D, Fisher S, Chapman B & Willcox J (2019) 'Local radio to promote mental health awareness: a public health initiative' BJPsych Open 5, (4) , DOI Open access
Shankar R, Wilcock M, Deb S, Goodey R, Corson E, Pretorius C, Praed G, Pell A, Vujkovic D & Wilkinson E (2019) 'A structured programme to withdraw antipsychotics among adults with intellectual disabilities: The Cornwall experience' Journal of Applied Research in Intellectual Disabilities 32, (6) 1389-1400 , DOI
Nancarrow T, Rencher J, Wilcock M, Bonell S, Wolke T & Shankar R (2019) 'Bespoke STOMP training for learning disability teams—Does it work?' British Journal of Learning Disabilities 47, (3) 181-187 , DOI
Watkins L, O’Dwyer M & Shankar R (2019) 'New anti-seizure medication for elderly epileptic patients' Expert Opinion on Pharmacotherapy 20, (13) 1601-1608 , DOI
van Hoorn A, Carpenter T, Oak K, Laugharne R, Ring H & Shankar R (2019) 'Neuromodulation of autism spectrum disorders using vagal nerve stimulation' Journal of Clinical Neuroscience 63, 8-12 , DOI
Watkins LV, Cock HR, Angus-Leppan H & Shankar R (2019) 'Valproate and the Pregnancy Prevention Programme: exceptional circumstances' British Journal of General Practice 69, (681) 166-167 , DOI
Kinney MO, McCluskey G, Friedman D, Walker MC, Sander JW & Shankar R (2019) 'Investigative practice into sudden death in epilepsy: A global survey' Acta Neurologica Scandinavica 139, (5) 476-482 , DOI
Watkins L, Cock H, Angus-Leppan H, Morley K, Wilcock M & Shankar R (2019) 'Valproate MHRA Guidance: Limitations and Opportunities' Frontiers in Neurology 10, , DOI Open access
Shankar R, Wilcock M, Oak K, McGowan P & Sheehan R (2018) 'Stopping, rationalising or optimising antipsychotic drug treatment in people with intellectual disability and/or autism' Drug and Therapeutics Bulletin 57, (1) 10-13 , DOI
Murphy V, Hallahan B, O’ Connell H, Wright B, Kelly BD, Gulati G & Shankar R (2018) 'The neurology–psychiatry interface in epilepsy' Irish Journal of Psychological Medicine 38, (1) 9-15 , DOI Open access
Lines G, Henley W, Winterhalder R & Shankar R (2018) 'Awareness, attitudes, skills and training needs of psychiatrists working with adults with intellectual disability in managing epilepsy' Seizure 63, 105-112 , DOI
Shankar R & Wilcock M (2018) 'Improving knowledge of psychotropic prescribing in people with Intellectual Disability in primary care' PLOS ONE 13, (9) e0204178-e0204178 , DOI Open access
Young C, Shankar R, Henley W, Rose A, Cheatle K & Sander JW (2018) 'SUDEP and seizure safety communication: Assessing if people hear and act' Epilepsy & Behavior 86, 200-203 , DOI
Angus-Leppan H, Shankar R & Cock H (2018) 'Valproate, women, and exceptional circumstances' BMJ k3625-k3625 , DOI
Watkins L & Shankar R (2018) 'Reducing the Risk of Sudden Unexpected Death in Epilepsy (SUDEP)' Current Treatment Options in Neurology 20, (10) , DOI
Eustice S, Endacott R, Morris J, Shankar R & Kent B (2018) 'Women’s experiences of managing digitation: do we ask enough in primary care?' JRSM Open 9, (8) 205427041878361-205427041878361 , DOI Open access
Rohracher A, Zimmermann G, Villanueva V, Garamendi I, Sander JW, Wehner T, Shankar R, Ben-Menachem E, Brodie MJ & Pensel MC (2018) 'Perampanel in routine clinical use across Europe: Pooled, multicenter, observational data' Epilepsia 59, (9) 1727-1739 , DOI
Laugharne R, Thompson M, Srivastava A, Marlow S & Shankar R (2018) 'Getting a balance between generalisation and specialisation in mental health services: a defence of general services' BJPsych Bulletin 42, (6) 229-232 , DOI Open access
Shankar R, Rowe C, Van Hoorn A, Henley W, Laugharne R, Cox D, Pande R, Roy A & Sander JW (2018) 'Under representation of people with epilepsy and intellectual disability in research' PLOS ONE 13, (6) e0198261-e0198261 , DOI Open access
Shankar R, Newman C, Gales A, McLean BN, Hanna J, Ashby S, Walker MC & Sander JW (2018) 'Has the Time Come to Stratify and Score SUDEP Risk to Inform People With Epilepsy of Their Changes in Safety?' Frontiers in Neurology 9, Author Site , DOI Open access
Saxena A, Jones L, Shankar R, McLean B, Newman CGJ & Hamandi K (2018) 'Sudden unexpected death in epilepsy in children: a focused review of incidence and risk factors' Journal of Neurology, Neurosurgery and Psychiatry 89, (10) jnnp-2017-317702-jnnp-2017-317702 , DOI Open access
Shankar R, Henley W, Boland C, Laugharne R, McLean BN, Newman C, Hanna J, Ashby S, Walker MC & Sander JW (2018) 'Decreasing the risk of sudden unexpected death in epilepsy: structured communication of risk factors for premature mortality in people with epilepsy' European Journal of Neurology 25, (9) 1121-1127 Author Site , DOI Open access
Laugharne R, Eaves S, Mascas A, Psatha K, Dinnis G, Trower J & Shankar R (2018) 'Desperately seeking outcomes: quantifying the effectiveness of community mental healthcare using Health of the Nation Outcome Scales' BJPsych Open 4, (3) 91-94 , DOI Open access
Page R, Shankar R, McLean BN, Hanna J & Newman C (2018) 'Digital Care in Epilepsy: A Conceptual Framework for Technological Therapies' Frontiers in Neurology 9, , DOI Open access
Jalihal V, Shankar R, Henley W, Parrett M, Tittensor P, McLean BN, Ahmed A & Sander JW (2018) 'Eslicarbazepine acetate as a replacement for levetiracetam in people with epilepsy developing behavioral adverse events' Epilepsy & Behavior 80, 365-369 , DOI
Kerr MP, Watkins LV, Angus-Leppan H, Corp A, Goodwin M, Hanson C, Roy A & Shankar R (2018) 'The provision of care to adults with an intellectual disability in the UK. A Special report from the intellectual disability UK chapter ILAE' Seizure 56, 41-46 , DOI
Watkins L, Shankar R & Sander JW (2018) 'Identifying and mitigating Sudden Unexpected Death in Epilepsy (SUDEP) risk factors' Expert Review of Neurotherapeutics 18, (4) 265-274 , DOI
Beck RW, Laugharne J, Laugharne R, Woldman W, McLean B, Mastropasqua C, Jorge R & Shankar R (2017) 'Abnormal cortical asymmetry as a target for neuromodulation in neuropsychiatric disorders: A narrative review and concept proposal' Neuroscience & Biobehavioral Reviews 83, 21-31 , DOI
Niven A, Goodey R, Webb A & Shankar R (2017) 'The use of psychotropic medication for people with intellectual disabilities and behaviours that challenge in the context of a community multidisciplinary team approach' British Journal of Learning Disabilities 46, (1) 4-9 , DOI
Shankar R (2017) 'Re: Reply to Drs. Joob and Wiwanikit' Epilepsy & Behavior 75, 275-275 , DOI
Jory C, Shankar R, Oak K, Oates J & Wilcock M (2017) 'Going down the tubes! Impact on seizure control of antiepileptic medication given via percutaneous feeding tubes' Epilepsy & Behavior 74, 114-118 , DOI
Wehner T, Mannan S, Turaga S, Vallabhaneni K, Yip HM, Wiggans C, Shankar R, Duncan JS & Sander JW (2017) 'Retention of perampanel in adults with pharmacoresistant epilepsy at a single tertiary care center' Epilepsy & Behavior 73, 106-110 , DOI
Alexander RT, Shankar R, Cooper SA, Bhaumik S, Hastings R, Kapugama CL, Tromans SJ & Roy A (2017) 'Challenges and pitfalls of antipsychotic prescribing in people with learning disability' British Journal of General Practice 67, (661) 372-373 , DOI
Shankar R, Henley W, Wehner T, Wiggans C, McLean B, Pace A, Mohan M, Sadler M, Doran Z & Hudson S (2017) 'Perampanel in the general population and in people with intellectual disability: Differing responses' Seizure 49, 30-35 , DOI
Chester V, Brown AS, Devapriam J, Axby S, Hargreaves C & Shankar R (2017) 'Discharging inpatients with intellectual disability from secure to community services: risk assessment and management considerations' Advances in Mental Health and Intellectual Disabilities 11, (3) 98-109 , DOI
Shankar R, Jory C, McLean B, Tittensor P & Walker M (2017) 'Epilepsy awareness and emergency rescue training: Ignorance is bliss!' Epilepsy & Behavior 70, 212-216 , DOI
Corson E, Hargreaves C, Grimshaw S, Wiggans J, Mitchell S, Toon R, Palmer C, Cox D, Pretorius C & Wilkinson E (2017) 'An evidenced-based strategy for timely delivery of clinical letters' Progress in Neurology and Psychiatry 21, (1) 11-14 , DOI
Allard J, Shankar R, Henley W, Brown A, McLean B, Jadav M, Parrett M, Laugharne R, Noble AJ & Ridsdale L (2017) 'Frequency and factors associated with emergency department attendance for people with epilepsy in a rural UK population' Epilepsy & Behavior 68, 192-195 , DOI
Shankar R, Donner EJ, McLean B, Nashef L & Tomson T (2017) 'Sudden unexpected death in epilepsy (SUDEP): what every neurologist should know' Epileptic Disorders 19, (1) 1-9 , DOI
Chapman B, Shankar R, Palmer J & Laugharne R (2017) 'Mental health professionals and media professionals: a survey of attitudes towards one another' Journal of Mental Health 26, (5) 464-470 , DOI
Mclean B, Shankar R, Hanna J, Jory C & Newman C (2016) 'Sudden unexpected death in epilepsy: measures to reduce risk' Practical Neurology 17, (1) 13-20 , DOI Open access
Laugharne R, Branch M, Mitchell A, Parkin L, Confue P, Shankar R, Wilson-James D, Marshall M, Edgecombe M & Keaney B (2016) 'What happens when 55% of acute psychiatric beds are closed in six days: an unexpected naturalistic observational study' JRSM Open 7, (10) 205427041664928-205427041664928 , DOI Open access
Wolfe K, Strydom A, Morrogh D, Carter J, Cutajar P, Eyeoyibo M, Hassiotis A, McCarthy J, Mukherjee R & Paschos D (2016) 'Chromosomal microarray testing in adults with intellectual disability presenting with comorbid psychiatric disorders' European Journal of Human Genetics 25, (1) 66-72 , DOI Open access
Shankar R, Walker M, McLean B, Laugharne R, Ferrand F, Hanna J & Newman C (2016) 'Steps to prevent SUDEP: the validity of risk factors in the SUDEP and seizure safety checklist: a case control study' Journal of Neurology 263, (9) 1840-1846 , DOI Open access
Newman C, Shankar R, Hanna J, McLean B, Osland A, Milligan C, Ball A, Jory C & Walker M (2016) 'Developing an Evidence-Based Epilepsy Risk Assessment eHealth Solution: From Concept to Market' JMIR Research Protocols 5, (2) e82-e82 , DOI
Dimitrelis K & Shankar R (2016) 'Pharmacological treatment of schizophrenia - a review of progress' Progress in Neurology and Psychiatry 20, (3) 28-35 , DOI
Doran Z, Shankar R, Keezer MR, Dale C, McLean B, Kerr MP, Devapriam J, Craig J & Sander JW (2016) 'Managing anti-epileptic drug treatment in adult patients with intellectual disability: a serious conundrum' European Journal of Neurology 23, (7) 1152-1157 , DOI
Shankar R, Bradley-Smith G, Brigham P, Devapriam J, Osborne A & Axby S (2016) 'Patient- and carer-held health records: can they improve annual health checks for patients with learning disability?' British Journal of General Practice 66, (645) 210-212 , DOI
Jory C, Shankar R, Coker D, McLean B, Hanna J & Newman C (2016) 'Safe and sound? A systematic literature review of seizure detection methods for personal use' Seizure 36, 4-15 , DOI
Shankar R, Jones G, Devapriam J & Roy A (2016) 'Successful transfers to out-of-area placements' Learning Disability Practice 19, (1) 18-22 , DOI
Cocksedge K, Shankar R & Simon C (2016) 'Depression and pain: the need for a new screening tool' Progress in Neurology and Psychiatry 20, (1) 26-32 , DOI
Scott D & Shankar R (2015) 'Mental health and CPD: could videoconferencing be a way forward?' Progress in Neurology and Psychiatry 19, (5) 25-26 , DOI
Shankar R, Newman C, McLean B, Anderson T & OBE JH (2015) 'Can technology help reduce risk of harm in patients with epilepsy?' British Journal of General Practice 65, (638) 448-449 , DOI
Shankar R, Olotu V, Axby S, Hargreaves C & Devapriam J (2015) 'Managing clients placed far away from their communities' Learning Disability Practice 18, (1) 29-34 , DOI
Young C, Shankar R, Palmer J, Craig J, Hargreaves C, McLean B, Cox D & Hillier R (2015) 'Does intellectual disability increase sudden unexpected death in epilepsy (SUDEP) risk?' Seizure 25, 112-116 , DOI
Shankar R, Jory C, ashton J, McLean B & Walker M (2015) 'Epilepsy emergency rescue training' BMJ Quality Improvement Reports 4, (1) u208167.w3566-u208167.w3566 , DOI
Shankar R, Newman C, Hanna J, ashton J, Jory C, McLean B, Anderson T, Walker M, cox D & Ewins L (2015) 'Keeping patients with epilepsy safe: a surmountable challenge?' BMJ Quality Improvement Reports 4, (1) u208167.w3252-u208167.w3252 , DOI Open access
Cocksedge KA, Simon C & Shankar R (2014) 'A difficult combination: chronic physical illness, depression, and pain' British Journal of General Practice 64, (626) 440-441 , DOI
Shankar R, Jalihal V, Walker M, Laugharne R, McLean B, Carlyon E, Hanna J, Brown S, Jory C & Tripp M (2014) 'A community study in Cornwall UK of sudden unexpected death in epilepsy (SUDEP) in a 9-year population sample' Seizure 23, (5) 382-385 , DOI
Shankar R, Cox D, Jalihal V, Brown S, Hanna J & McLean B (2013) 'Sudden unexpected death in epilepsy (SUDEP): Development of a safety checklist' Seizure 22, (10) 812-817 , DOI
Shankar R, Bradley M, Jory C & Olotu V (2013) 'Consent to contraceptive treatment among clients with epilepsy' Learning Disability Practice 16, (10) 27-30 , DOI
Shankar R, Jory C, Tripp M, Cox D & Hagenow K (2013) 'Monitoring nocturnal seizure in vulnerable patients' Learning Disability Practice 16, (9) 36-38 , DOI
Woodberry MW, Shankar R, Cent A, Jerome KR & Kuypers J (2013) 'Comparison of the Simplexa FluA/B & RSV Direct Assay and Laboratory-Developed Real-Time PCR Assays for Detection of Respiratory Virus' Journal of Clinical Microbiology 51, (11) 3883-3885 , DOI
Laugharne R, Shankar R, Dunkley R, Fisher S & Barnett J (2013) 'A radio phone-in programme for mental health education and promotion' Progress in Neurology and Psychiatry 17, (5) 37-38 , DOI
Shankar R, Olotu VO, Cole N, Sullivan H & Jory C (2013) 'Case report: Vagal nerve stimulation and late onset asystole' Seizure 22, (4) 312-314 , DOI
Shankar R, Smith K & Jalihal V (2013) 'Sensory processing in people with Asperger syndrome' Learning Disability Practice 16, (2) 22-27 , DOI
Shankar R, Laugharne R & Ferrars FD (2012) 'How to ensure people with multiple diagnoses make the right decisions' Learning Disability Practice 15, (2) 27-30 , DOI
Scally G, Imtiaz J, Bethune R, Young A, Ward W, Herzig H, Shankar R & Laugharne R (2012) 'Helping clinicians improve the health of their communities: The Beddoes Fellows Programme' Journal of Behavioral Health 1, (3) 167-167 , DOI
Shankar R, Laugharne R, Pritchard C, Joshi P & Dhar R (2011) 'Modified Attitudes to Psychiatry Scale Created Using Principal-Components Analysis' Academic Psychiatry 35, (6) , DOI
de Ferrars F & Shankar R (2010) 'Assessing Mental Capacity' InnovAiT: Education and inspiration for general practice 4, (2) 98-103 , DOI
Shankar R, Jalihal V, Walker M & Zeman A (2010) 'Pseudocataplexy and Transient Functional Paralysis: A Spectrum of Psychogenic Motor Disorder' The Journal of Neuropsychiatry and Clinical Neurosciences 22, (4) 445-450 , DOI
Shankar R, Mascas A, Laugharne R, Wilkinson E & O'Muirithe B (2010) 'A comparison of suicide and undetermined deaths in Cornwall across national and local agencies' Medicine, Science and the Law 50, (1) 19-21 , DOI
Laugharne R & Shankar R (2009) 'Quality standards for community mental health teams' Psychiatric Bulletin 33, (10) 387-389 , DOI
Brown S, Shankar R & Smith K (2009) 'Borderline personality disorder and sensory processing impairment' Progress in Neurology and Psychiatry 13, (4) 10-16 , DOI
Laugharne R, Appiah-Poku J, Laugharne J & Shankar R (2009) 'Attitudes Toward Psychiatry Among Final-Year Medical Students in Kumasi, Ghana' Academic Psychiatry 33, (1) 71-75 , DOI
O'Muirithe B & Shankar R (2008) 'An audit of the quality of reports to Mental Health Review Tribunals' Medicine, Science and the Law 48, (3) 221-224 , DOI
Shankar R (2008) 'A critique of NHS culture as applied to psychiatry' British Journal of Healthcare Management 14, (4) 147-152 , DOI
Chapters
Shankar R & Walker M (2020) 'Epilepsy in People with Intellectual Disabilities' in Bhaumik S; Alexander R Oxford Textbook of the Psychiatry of Intellectual Disability Oxford University Press, USA , DOI Open access
Shankar R, Watkins L & Brown S (2019) 'Intellectual Disability and Epilepsy' in Prasher V; Janicki M Physical Health of Adults with Intellectual and Developmental Disabilities Springer 187-202 , DOI Open access
Shankar R, Watkins L & Brown S (2018) 'Intellectual Disability and Epilepsy' Physical Health of Adults with Intellectual and Developmental Disabilities Springer International Publishing 187-202 , DOI
Shankar R, Doran Z & Kerr M (2016) 'The Use of Antiepileptic Medication in Adults with Intellectual Disabilities: A Serious Conundrum' in Prasher V; Kerr M Epilepsy and Intellectual Disabilities Springer 115-143 , DOI
Shankar R, Doran Z & Kerr M (2016) 'The Use of Antiepileptic Medication in Adults with Intellectual Disabilities: A Serious Conundrum' Epilepsy and Intellectual Disabilities Springer International Publishing 115-143 , DOI
Conference Papers
Nancarrow T, Rencher J, Wilcock M, Bonell S, Wolke T & Shankar R (2019) 'BESPOKE TRAINING FOR STOMP (STOP OVER-MEDICATING PEOPLE WITH A LEARNING DISABILITY, AUTISM OR BOTH) FOR LEARNING DISABILITY SERVICES DOES IT WORK?' 689-689
Shankar R & Wilcock M (2019) 'IMPROVING PSYCHOTROPIC MEDICATION PRESCRIBING IN PEOPLE WITH INTELLECTUAL DISABILITY IN UK PRIMARY CARE: AN EDUCATIONAL INTERVENTION' 678-678
Shankar R (2019) 'UNDER- REPRESENTATION OF PEOPLE WITH EPILEPSY AND INTELLECTUAL DISABILITY - FACT OR FICTION?' 792-792
Rohracher A, Zimmermann G, Villanueva V, Garamendi I, Sander J, Shankar R, Ben-Menachem E, Brodie MJ, Pensel MC & Wehner T (2017) 'PERAMPANEL IN ROUTINE CLINICAL USE ACROSS EUROPE: POOLED OBSERVATIONAL STUDIES' S107-S108
Neuray C, Zimmermann G, Villanueva V, Garamendi I, Sander J, Shankar R, Ben-Menachem E, Brodie MJ, Pensel MC & Wehner T (2017) 'PERAMPANEL USE IN OLDER PEOPLE WITH EPILEPSY: POOLED DATA FROM EUROPEAN OBSERVATIONAL STUDIES' S169-S169
McLean B, Shankar R, Newman C, Hanna J, Oxland A & Jory C (2017) 'PO048 Sudep and epilepsy risk – epsmon an e-health assessment tool' BMJ A24.3-A24 , DOI
Allard J, Shankar R, Henley W, Brown A, McLean B, Jadev M, Parrett M, Laugharne R, Noble A & Ridsdale L (2017) 'PO049 What drives ed attendance in people with epilepsy' BMJ A24.4-A25 , DOI
Shankar R, Quick C, Dawson J & Annal P (2017) 'A Simple Composite Dynamic Digital Tool to Communicate Complex Physical and Mental Health needs and Measure Outcomes: The Cornwall Health Radar' Cambridge University Press (CUP) S93-S94 , DOI
Shankar R & Ram S (2017) 'An evidenced based checklist to support anti-dementia medication withdrawal in people with down syndrome (DS), intellectual disability (Id) and dementia' Cambridge University Press (CUP) S599-S599 , DOI
Shankar R (2017) 'Does a Bespoke Intellectual Disability (ID) Epilepsy Service Reduce Mortality? A 11 Year Study of Sudden Unexpected Death in Epilepsy (SUDEP) in Cornwall UK' Cambridge University Press (CUP) S161-S161 , DOI
Shankar R, Wilkinson E, Roberts S & Rebecca O (2017) 'Zero suicide southwest UK initiative – Steps to mitigate suicide risk in local populations using quality improvement methodology and a whole life approach' Cambridge University Press (CUP) S402-S402 , DOI
Trinka E, Zimmermann G, Rohracher A, Shankar R, Sander J, Brodie MJ, Garamendi I, Wehner T, McLean B & Mohan M (2016) 'PAN-EUROPEAN REAL-WORLD EXPERIENCE WITH PERAMPANEL: RATIONALE, DESIGN, AND PRELIMINARY DATA FROM POOLED OBSERVATIONAL STUDIES ACROSS EUROPE' 229-230
Shankar R, Doran Z, Wiggans C, McLean B, Wehner T, Sander J, Pace A, Mohanraj R, Mohan M & Sadler M (2016) 'THE SAFETY AND EFFICACY OF PERAMPANEL AMONG DIFFERENT GROUPS OF PEOPLE WITH ID USING THE UK ANTI-EPILEPTIC DRUG INTELLECTUAL DISABILITY (EP-ID) REGISTER' 112-112
Shankar R, Doran Z, McLean BN, Walker MC, Sander LJ, Cox D, Hillier R, Sadler MJ, Mohan M & Parrett M (2015) 'A register for collecting and measuring outcomes of licensed anti-epileptic drugs in patients with epilepsy and intellectual disability and/or pervasive developmental disorders' 64-64
Doran Z, Shankar R, Sander LJ, Lee W, Dale C, Kerr M, Richard L, McLean BN, Devapriam J & Wilson K (2015) 'Prescribing for epilepsy in adult patients with an intellectual disability and/or pervasive developmental disorder: a systematic review' 389-389
Shankar R, Doran Z, McLean B, Cox D, Hillier R, Parratt M, Jory C, Mohan M & Sadler M (2015) 'PRELIMINARY DATA ON PERAMPANEL ESTABLISHING THE UTILITY OF THE CORNWALL UK INTELLECTUAL DISABILITY (ID) ANTI-EPILEPTIC DRUG (AED) REGISTER USED FOR COLLECTING AND MEASURING OUTCOMES OF LICENSED AEDS IN PATIENTS WITH EPILEPSY (PWE) AND ID' 135-135
Shankar R, Hanna J, McLean B, Cox D, Jory C, Newman C, Anderson T & Walker M (2015) 'THE SUDEP SAFETY CHECKLIST LIST PROJECT: STEPS TOWARDS SELF-MANAGEMENT OF SUDEP RISK FOR PATIENTS WITH EPILEPSY (PWE)' 38-39
Shankar R, Axby S, Bernal J & Goodrum W (2014) 'Analysis of quality of life of people with intellectual disability in community in Cornwall UK two and eight years post institutional abuse and mistreatment' 338-338
Shankar R, Cox D, McLean B, Hanna J, Jory C, Tripp M & Walker M (2014) 'Does an intellectual disability epilepsy service improve outcomes for patients with intellectual disability and epilepsy? A 9 year study of sudden unexpected death in epilepsy in the UK' 313-313
Bernall J & Shankar R (2014) 'Eight years later. Long-term follow-up of former inpatient survivors of institutional abuse' 392-392
Shankar R, Olotu V, Goodrum W, Axby S & Bernal J (2014) 'Sent away: 'export' of adults with ID to a rural county, the personal and economic costs' 332-332
Parrett MP, McLean BN, Shankar R & Cox D (2014) 'A SERVICE EVALUATION OF PERAMPANEL IN CORNWALL, UK' 110-111
Redfern P, Jory C, Shankar R, Tripp M & Cox D (2014) 'IDENTIFICATION OF OSTEOPOROSIS AMONGST PEOPLE WITH INTELLECTUAL DISABILITIES (ID) BEING TREATED WITH ANTIEPILEPTIC DRUGS (AEDS)' 211-211
Shankar R, Jory C, Hagnow K, Cox D & Tripp M (2014) 'THE USE OF JUST CHECKING (JC) MOTION PASSIVE INFRA RED (PIR) SENSORS AS ASSISTIVE TECHNOLOGY TO SCREEN FOR NOCTURNAL SEIZURES (NS) IN PATIENTS WITH SEVERE INTELLECTUAL DISABILITY (ID) WHO WERE UNABLE TO GIVE INFORMED CONSENT OR AT RISK OF BECOMING BEHAVIOURLY DISTRESSED WHEN ATTEMPTS WERE MADE TO HAVE OVERNIGHT EEGS' 195-196
Brown S, Shankar R, Cox D, M. McLean B & Jory C (2013) 'Clinical governance: risk assessment in SUDEP' Emerald 325-331 , DOI
Shankar R, Bradley M, Jory C, Olotu V, Tripp M & Cox D (2013) 'AUDIT OFWOMEN WITH AN INTELLECTUAL DISABILITY (ID) IN CORNWALL WHO ARE TAKING ANTIEPILEPTIC MEDICATION (AEDS) WITH CONCURRENT USE OF ORAL CONTRACEPTIVE PILLS (OCPS)' 129-129
Jalihal V, Joshi P, Charanya, Karim B & Shankar R (2013) 'Prevalence of depression in non-psychiatric geriatric inpatients in developing countries: A cross-sectional multicentre study' S59-S59
Shankar R & Laugharne R (2012) 'A CONCEPTUAL MODEL OF MENTAL CAPACITY MAPPING FOR A PATIENT WITH CONCOMITANT LEARNING DISABILITY, BIPOLAR AFFECTIVE DISORDER AND AN EMOTIONALLY UNSTABLE PERSONALITY DISORDER'
Shankar R & Cox D (2011) 'A COMPUTERIZED ALGORITHM FOR COMMUNICATING TREATMENT PROGRESS AND OFFERING CHOICE TO PATIENTS AND CARERS ACROSS EIGHT MAJOR DOMAINS IN THE EPILEPSY MANAGEMENT OF THE LEARNING DISABLED POPULATION' 34-34
Cox DA & Shankar R (2011) 'SUDDEN UNEXPECTED DEATH IN EPILEPSY (SUDEP) SAFETY CHECKLIST : A WAY OF QUANTIFYING AND DESCRIBING A PATIENT'S RISK OF SUDEP USING A PRACTICAL CLINICAL CHECKLIST ON A SINGLE SHEET' 23-23
Mathurin W, Brown S, Shankar R & Murton C (2009) 'DO ANTI-DEMENTIA DRUGS MODIFY THE COURSE OF SENILE MYOCLONIC EPILEPSY (SME)? OBSERVATIONS FROM DOWN SYNDROME (DS) & IMPLICATIONS FOR THE GENERAL POPULATION' 100-100
Shankar R, Jalihal V & Zeman A (2008) 'Pseudo-cataplexy' 973-973
Reports
Perera B, Korb L, Courtenay K & Shankar R (2021) Attention deficit hyperactivity disorder (ADHD) in adults with intellectual disability. Royal College of Psychiatrists Royal College of Psychiatrists Author Site Open access
Shankar R, Scheepers M, Liew A, Cross H, McLean B, Tittensor P, Slowie D, Toker-Lester H, Pullen A & Walker M (2020) Step Together Integrating Care for People with Epilepsy and a Learning Disability. Open access
Shankar R, Haut F & Courtenay K (2020) Mental health services for adults with mild intellectual disability. Royal College of Psychiatrists Royal College of Psychiatrists Author Site Open access
Shankar R, Watkins L, Alexander R, Devapriam J, Dolman J, Hari A, Laugharne R, McLean B, Ring H & Sander L (2017) Prescribing anti-epileptic drugs for people with epilepsy and intellectual disability. Royal College of Psychiatrists United Kingdom Royal College of Psychiatrists Author Site Open access
Shankar R, Mogbeyiteren E, Scheepers M, Dolman J, Watkins L, Attavar R, Carmody E, Haut F, Alexander R & Devapriam J (2017) Management of epilepsy in adults with intellectual disability. Royal College of Psychiatrists United Kingdom Royal College of Psychiatrists Author Site Open access

Other academic activities

I am the lead for the SUDEP and Seizure Safety Checklist (https://sudep.org/checklist) (2010 to present) to assess record and communicate SUDEP risk. The tool is used by epilepsy clinicians across UK and internationally (https://www.epilepsy.org.au/sudep-checklist/). It is converted to a self-empowerment mobile application – EpSMon (www.epsmon.com). Both tools have been evaluated across health & research communities. They have won the ILAE UK expert led poster 2015, patient safety awards 2016, Health Business Awards 2016, British Medical Journal awards 2016 (Neurology), 2017 * (Innovation) 2019 (Education) and US SUDEP Challenge award 2016 winner(83 applicants/25 countries). It is 1/7 projects selected by NHS England for the National Innovation accelerator programme 2017. A Cochrane review (2016 -CD011792) on SUDEP prevention singles out EpSMon. The RCGP has recommended EpSMon to all 70,000 GP practices through e-module training (2016)for epilepsy management & the BMJ commissioned a CPD module. Both Checklist & EpSMon are part of national epilepsy commissioning (http://www.epilepsytoolkit.org.uk/) and NHS RightCare toolkits. A recent NIHR review of emerging epilepsy technology has given the highest rating for EpSMon (page61). Key recent publications of 15 – https://doi.org/10.1016/j.yebeh.2019.07.020
https://doi.org/10.1016/j.yebeh.2019.106514 https://doi.org/10.1111/ene.13651 https://doi.org/10.1080/14737175.2018.1439738

I initiated, implemented and co-ordinate a monthly mental health phone in with BBC radio Cornwall (2010). It has run continuously for 9 years, delivered 105 episodes. The significant impact on local community is evidenced -
https://doi.org/10.1192/bjo.2019.51
 
Overprescribing/polypharmacy has been recognised to be a significant UK wide problem in people with DD (https://www.england.nhs.uk/learning-disabilities/improving-health/stomp/). An evidence based systemic approach led by me to de-prescribing is being adopted nationally and internationally. Evidence of successes and challenges – https://doi.org/10.1111/jar.12635
https://doi.org/10.1111/bld.12272 https://doi.org/10.1136/dtb.2018.000009 https://doi.org/10.1371/journal.pone.0204178 https://doi.org/10.1111/bld.12206

Do not flush your life away a public health campaign to reduce male suicides - https://www.cornwall.gov.uk/health-and-social- care/public-health-cornwall/public-health-campaigns/dont-flush-your-life-away/

I have been the lead for various national projects aimed at a holistic approach for people with DD and epilepsy. This includes identifying and mitigating the national problems, challenges in work force, resources and competency of various stakeholders involved in the care of these complex individuals. These National reports are –
https://www.rcpsych.ac.uk/improving-care/campaigning-for-better-mental-health-policy/college-reports/2017-college- reports/management-of-epilepsy-in-adults-with-intellectual-disability-cr203-may-2017 https://www.rcpsych.ac.uk/improving-care/campaigning-for-better-mental-health-policy/college-reports/2017-college- reports/prescribing-anti-epileptic-drugs-for-people-with-epilepsy-and-intellectual-disability-cr206-oct-2017 https://ilaebritish.org.uk/content/uploads/2019/06/ESNA-Midazolam-Guidelines.pdf
NHS RightCare national commissioning toolkit & NHS England national epilepsy pathway

Do not flush your life away - https://www.cornwall.gov.uk/health-and-social-care/public-health-cornwall/public-health- campaigns/dont-flush-your-life-away/ finalist for the BMJ Awards 2017.

The Purple Book - Book a tool for self-empowerment and monitoring on psychotropic and anticonvulsant medication for people with ID

I have developed a standardized 30 minute e-learning test to enable trainers across the UK to test their course attendees’ understanding of delivering good care and rescue Midazolam medication. The e-test includes videos to examine the candidate’s ability to identify the practical procedures required in Buccal Midazolam administration with the aim of ensuring the trainee has gained the necessary learning during training. The e- test was created in partnership and consultation with local, regional and national level epilepsy experts, service users, carers and charities. The website was tested for quality standards and is supported as a source to improve patient safety by our stakeholders including the JEC, the International League of Epilepsy UK chapter, SUDEP Action, Epilepsy Action, South West Epilepsy Nurses group, Peninsula Academic Health Science Network and two NHS Trusts. It was formally launched on the 17th September 2013 at the South –West Epilepsy Conference and was shortlisted for the HSJ awards 2014 and national patient safety awards 2015. This has now been adopted by Cornwall Council and reaches all Cornish registered organizations (16000 carers). This model is being looked to being adopted in other parts of the country. I am leading a collaborative of ILAE UK and ESNA to redevelop the National rescue epilepsy guidance.

I have developed a checklist to support safe transfer of patients with ID across regions to address and mitigate some of the concerns raised in the Winterbourne enquiry. This checklist has been approved by the RCPsych executive and is approved as good practice by the National LD senate.

I am a co-developer of the intervention ‘SMART CART’ which has been awarded the internationally acclaimed Medical Futures innovation award (14/06/07).

I helped conceptualize, arrange and organize the mock OSCE now CASC exam (13 continuous stations) for the Part 3 MRCPsych clinical entrants. The mock exam is bi annual and is well received. It caters to all examinees in the South-West region of UK. Places for candidates outside Cornwall are sold at nominal rates and funds generated through this help buffer the Trust CPD budget. This was awarded the Royal College of Psychiatrists (south west division) Innovation award for 2009.

I was successful in acquiring 2 separate £5000 grants from the Peninsula Deanery to help develop training DVDs. The projects have been completed successfully. The first project on CASC DVDs is a well-recognized part of the clinical exam preparation now with sales being nationally and internationally. The money from the sale of DVDs goes towards the Trust continued professional development funds for the Trust doctors. This was awarded the Royal College of Psychiatrists (south west division) Innovation award for 2011 and was ‘highly commended’ at the BMA book awards.

Our new quality of life and communication e- tool ‘Cornwall epilepsy radar’ is being piloted.

A New pathway for consent to assist GPs and easy read for female patients who have learning disability to foster informed choice and communication around oral contraceptive use and antiepileptic medication.

I have helped conceptualized mental health podcasts for GPs in Innovait (The RCGP training journal) which is now a regular monthly feature

Additional information

Awards and Notable Achievements –

1. 01/2018 – Most Excellent Order of the British Empire (MBE)

2. 10/2020 – Winner - BMJ Awards – Mental Health Team of the Year

3. 04/2019 – Winner – BMJ Awards – Education Team of the Year

4. 08/2018 - Epileptic Disorders ILAE Educational Prize (https://www.ilae.org/about-ilae/awards/epileptic-disorders- educational-prize)

5. 05/2018 – Finalist - BMJ Awards – Mental Health Category

6. 05/2017 – Highly Commended - BMJ Awards – Innovation Team of the Year

7. 05/2017 – Finalist - BMJ Awards – Mental Health Category

8. 11/2016 – Winner – Health Business Awards – Healthcare IT category

9. 11/2016 - EpSMon – peer r/w chosen by NHS England as 1 of 7 National Innovation Accelerator Fellowship

10. 11/2016 – Finalist (top 3) – South West NHS Leadership awards

11. 09/2016 - Finalist (top 3) – EHI national awards

12. 06/2016 – Winner- HSJ Patient Safety Awards - Education and Training in Patient Safety

13. 06/2016 – Winner - HSJ Patient Safety Awards – Patient Safety in Mental Health

14. 06/2016 – Finalist- HSJ Patient Safety Awards - Improving Safety in Primary Care

15. 06/2016 – Finalist- HSJ Patient Safety Awards - Managing Long-Term Conditions

16. 06/2016 – Finalist- HSJ Patient Safety Awards – Technology and IT to Improve Patient Safety

17. 05/2016 – Winner – BMJ Awards – Neurology Team of the Year

18. 04/2016 – research paper ‘safe and sound’ European Journal of Epilepsy editorial choice 03/2016

19. 03//2016 - Finalist- Health Service Journal (HSJ) Value Awards – General Medicine

20. 03/2016 – Finalist- Health Service Journal (HSJ) Value Awards –Specialist Care

21. 03/2016 - Finalist for Health service Journal (HSJ) Awards – Telehealth

22. 02/2016 – Winner – Epilepsy Foundation USA - SUDEP Challenge

23. 02/2016 - National Institute for Health Research (NIHR) commercial principal investigators Award

24. 11/2015 – Finalist – Health Service Journal (HSJ) Patient Safety

25. 11/2015 – Finalist – Health Service Journal (HSJ) – Efficiency with technology

26. 09/2015 - ILAE UK – 1st prize – expert led poster presentation

27. 07/2015 – Finalist- Health Service Journal (HSJ) Patient Safety Awards -Safety in Medicines Management

28. 11/2014 - Finalist for Health service Journal (HSJ) Awards – Improved Care with Technology

29. 08/2014 - Best Poster Award – Academic Psychiatry Conference Singapore

30. 03/2014 – European Journal of Epilepsy paper in the top 5 most downloaded papers for the quarter

31. 11/2013 - Finalist for Health service Journal (HSJ) Awards – innovation with Technology category

32. 11/2013 – Finalist Royal College of Psychiatrists – Public educator of the year

33. 11/2012 - Finalist for the Health service Journal (HSJ) Awards – mental health innovations category.

34. 11/2012 - The RCPsych (south west division) Innovation award runner’s up for monthly Radio.

35. 09/2012 – Runners up - CFT Staff Recognition awards (service user nominated category)

36. 04/2012 – Finalist in the British Medical Journal (BMJ) Awards Public Communicator Category

37. 11/2011 - The RCPsych (south west division) Innovation award for the Cornish CASC DVDs

38. 09/2011 – British Medical Association (BMA) book awards – ‘highly commended’ award

39. 05/2011 – 1st prize for audit poster at the RCGP southwest Tamar annual study day

40. 11/2009 - The RCPsych (south west division) Innovation award for the Cornish CASC Project

41. 06/2007 - Medical Futures innovation international award for SMART Cart