CIDER – Cornwall Intellectual Disability Equitable Research

Enhancing the care of people with intellectual disability through research and service development
CIDER – Cornwall Intellectual Disability Equitable Research
<p>CIDER logo</p>



Formally launched in October 2018 and led by Professor Rohit Shankar, The Cornwall Intellectual Disability Equitable Research (CIDER), is a partnership between the University of Plymouth and Cornwall Partnership NHS Foundation Trust (CFT) focusing on people with intellectual disabilities.

 

 Evidence of impact

  • The SUDEP checklist has been adopted clinically throughout the UK.
  • The SUDEP checklist has been adopted internationally including in Australia.
  • EpsMon has been downloaded by over 3000 people with epilepsy for self-management of their epilepsy.
  • The Ep-ID register has collected data on 800 people with epilepsy throughout the UK.
  • There is evidence that the Ep-ID register has changed prescribing in epilepsy in people with ID- anti epileptics are more slowly increased in dosage.
  • Professor Shankar is now a member of the NICE Expert Panel on epilepsy and the National Confidential Inquiry.
  • NHS Rightcare toolkit (PDF)
  • Oversaw the development of the national guidance for basic epilepsy training via ESNA, ILAE British chapter and RCPsych ID faculty.

Awards

  • BMJ awards – Mental health category (2020), Education (2019), innovation (2017 – highly commended), Neurology (2016).
  • Dr Shankar was awarded an MBE for services to people with Developmental Disabilities in Cornwall in 2018.
  • Epileptic Disorders ILAE Educational Prize for best paper (2018).
  • ILEA (International League Against Epilepsy) Research Paper of the Year 2017.
  • Health Business Awards (2016), National Innovation Accelerator (NIA) Fellowships (2017), HSJ Patient Safety Awards - Education and Training in Patient Safety (2016) HSJ Patient Safety Awards- Patient Safety in Mental Health (2016), Epilepsy Foundation USA - SUDEP Challenge (2016), NIHR commercial principal investigators Award (2016).

Projects

EpSMon: Epilepsy Self-Monitoring EpSMon: Epilepsy Self-Monitoring

BioEP – a novel digital biomarker of epilepsy BioEP – a novel digital biomarker of epilepsy

SUDEP and Seizure Safety Checklist SUDEP and Seizure Safety Checklist

Brain in Hand Brain in Hand

The team

  • Professor Rohit Shankar MBE FRCPsych, Professor of Neuropsychiatry at University of Plymouth and Consultant Psychiatrist in Neurodevelopment at CFT – Director of CIDER

  • Dr Richard Laugharne FRCPsych, Consultant Psychiatrist at CFT – Director of Mental Health Research in Cornwall and Deputy Director of CIDER

  • Dr David Branford PhD – Specialist pharmacist in intellectual disabilities

  • Professor Gyles Glover FRCPsych FFPH, Public Health Specialist

  • Dr Charlotte Annesley MRCP – Intellectual disability physician

  • Dr Kirsten Lamb MRCGP – Chair RCGP – ID special interest group

  • Mrs Helen Toker-Lester MBA – Social care and commissioning

  • Research Manager, Cornwall Partnership NHS Foundation Trust Research & Innovation Team

    Ben Hyams

    Research Manager, Cornwall Partnership NHS Foundation Trust Research & Innovation Team
  • Senior Researcher, Cornwall Partnership NHS Foundation Trust Research & Innovation Team Honorary University Fellow - University of Plymouth, Peninsula Medical School (Faculty of Health)

    Sarah Lennard

    Senior Researcher, Cornwall Partnership NHS Foundation Trust Research & Innovation Team Honorary University Fellow - University of Plymouth, Peninsula Medical School (Faculty of Health)
  • Senior Clinical Studies Officer | Academic Lead, Cornwall Partnership NHS Foundation Trust Research & Innovation Team Honorary University Fellow - University of Plymouth, Peninsula Medical School (Faculty of Health)

    Dr Jon Allard

    Senior Clinical Studies Officer | Academic Lead, Cornwall Partnership NHS Foundation Trust Research & Innovation Team Honorary University Fellow - University of Plymouth, Peninsula Medical School (Faculty of Health)
  • Clinical Studies Officer/Occupational Therapist Cornwall Partnership NHS Trust Research & Innovation Team

    Ruth Bishop

    Clinical Studies Officer/Occupational Therapist Cornwall Partnership NHS Trust Research & Innovation Team
  • Research Nurse & Staff Governor, Cornwall Partnership NHS Foundation Trust Research & Innovation Team

    Ian Summers

    Research Nurse & Staff Governor, Cornwall Partnership NHS Foundation Trust Research & Innovation Team
  • Clinical Studies Officer, Cornwall Partnership NHS Foundation Trust Research and Innovation Team

    Danielle Bilkey

    Clinical Studies Officer, Cornwall Partnership NHS Foundation Trust Research and Innovation Team

Collaborators

University of Plymouth collaborators
External collaborators - academic:
  • University of Exeter Medical School: Professor Jonathan Mill and Professor William Henley
  • Falmouth University: Mr Brian Clark
  • UCL Institute of Neurology: Professor Matthew Walker and Professor Ley Sander
  • University of Birmingham - Professor John Terry
  • University of Sheffield - Professor Dan Goodley
  • University of Cardiff - Professor Ian Jones and Dr Lance Watkins
National Institute of Health Research (NIHR)
  • Southwest Peninsula Clinical Research Network (CRN)
  •  Southwest Peninsula Academic Health Science Network (AHSN)
  • Peninsula Applied Research Collaboration (PenARC)
Life Science Industry:
  • Eisai Co. Ltd
  • UCB Inc.
  • Bial Pharmaceutical Co
  • Liva Nova
  • Desitin
  • UN EEG medical
  • GW pharma
  • Arvelle
Charities and clinical networks:
SMEs:
  • Neuronostics Ltd
  • Psychoanalytica Community interest Company (CiC)
<p>Cornwall Partnership NHS Foundation Trust<br></p>

Research and innovation – Cornwall Partnership NHS Foundation Trust 

Our research team deliver clinical research throughout Cornwall
Research is a vital component of NHS care to determine the best treatments and services for improving the nation's mental and physical wellbeing. Our Trust is a research-active NHS trust, meaning that research and adding to the evidence base for healthcare form a key element of our services.

John Bull building