Dr Helen Lloyd
Associate Professor of Psychology
School of Psychology (Faculty of Health)
Associate Professor, School of Psychology.
I am a mixed methods researcher focused on utilising action and design informed research to create health and social improvements for marginalised, seldom heard or stigmatised groups. My research to date has explored how notions of race, ethnicity and identity influence health behaviour and the experiences and outcomes of care and medical treatment. I am particularly interested in how structural factors interact to shape access to care and health inequality. My multi-disciplinary approach to research and teaching blends concepts from psychology with anthropology and the sociology of medicine, and incorporates aspects of creative and design arts and humanities. Prior to joining the school of Psychology I spent 5 years working for the south west Peninsula Collaboration for Applied Heath and Care focusing on complex interventions and experiences of care. During this time I developed the Person Centred Coordinated Care (P3C) collaborative with Professor Richard Byng. This applied health services work continues, and is focused on improving the experiences and outcomes of care for people with long term conditions.
My research experience spans the health sciences from occupational health, psychiatry (Imperial College), epidemiology, health services research and public health (UCL). In 2003 I completed an MSc in medical anthropology at UCL, followed by the successful completion of my D.Phil. in Anthropology and Psychiatry at the University of Oxford.
Following this I established a research consultancy based in Oxford to promote and integrate medical anthropology as an applied approach in UK public health research. This was achieved by securing research contracts with a range of clients including the Department of Health and various UK Primary Care Trusts. My public sector contracts included a novel qualitative synthesis for the Department of Health to investigate drivers of health inequalities across a range of health concerns including, childhood obesity, smoking, alcohol and drug use, sexual health and teenage pregnancy, and mental health. An example of this work is the Sub-21 project to reduce under age street drinking. This project utilising participant observation sessions with youths engaging in street drinking and depth interviews to shape the subsequent intervention. Young people and retailers shaped the intervention development of the intervention; a rolling program of youth activities and a retailer’s campaign providing new tools to help them reduce illegal alcohol sales. The project reached over 3000 young people and resulted in a 30% decrease in anti-social behaviour and alcohol-related incidents (LSHTM).
I am a member of the British Psychological Society and a visiting lecturer at the Centre for Person Centred Care (GPCC), University of Gothenburg, Sweden.
Roles on external bodies
I am an NIHR grant application reviewer and regularly review academic papers for a range of peer reviewed journals.
PSYC577 – Advanced Interpretive Methods (MSc)
PSYC108PP – Introduction to Psychology for non-psychology students (BSc)
PSYC7993 - Advanced Professional Practice and Service Evaluation Methodologies
PSYC515 – Health and Wellbeing S2 (BSc)
PSYC519 – Research Skills in Practice S2 (BSc)
PSYC783 – Applied Health Research and Service Evaluation (MSc)
PSYC416 – Connecting Psychology S1: Art and Psychology (BSc)
- 19 students (12 UGs, 7 MScs)
My doctoral research investigated caregiving in UK Punjabi Indian Sikh and White British parents with a son or daughter with schizophrenia. It explored the clinical, family and service use variables associated with caregiver burden, and if burden predicted one-year patient outcome. This cross-disciplinary study integrated a quantitative psychological and anthropological methods to explore the local, social, and cultural factors that shaped perceptions and experiences of burden and caregiving. The findings from this study suggest that parental burden in schizophrenia is influenced by contextual and domestic features over and above ethnicity. Furthermore, many parents with stabilised offspring do not perceive their role as burdensome and community patients with the right support can live independently, work, and maintain quality relationships with their families. More importantly, the findings remind us how local socio-environmental factors shape human experience, and that while Indian Punjabi parents and White British parents differ in a number of respects, they share fundamental characteristics that exist above and beyond ethnicity, race or religion.
Person Centred Coordinated Care (P3C):
I established and led the P3C programme with the aim of improving the experiences and outcomes of care for people with long-term conditions. This work has been selected as a Research Excellence Framework (REF) impact case study for Unit 4, entitled ‘Improving long term conditions (LTCs) and multiple long term conditions (MLTCs) through data driven practice change using a newly developed P3C model’. This work continues through national and international collaborations and through the development and intersection of the following themes:
· Culturally Relevant Person Centred Care: ‘Forced to Flee: a Peer led Community Mental Health Intervention’
Research bid submitted to NIHR HSDR in partnership with the refugee community, START, Livewell and Headspace aims to design a person centred and culturally relevant community health intervention for refugees. If funded this project will commence in late 2021 in collaboration with SW ARC, UoP Medical School, Bristol ARC and the University of East London.
· Cultural Validation Of The P3CEQ
A paper reporting the utility of the P3CEQ across Europe (Germany, Spain, Finland, Estonia & Netherlands) is being prepared in collaboration with a team of EU researchers (Sustain/SelFIE/Nivel). We are also working on an analysis of a large the UK and Dutch data set with Dutch Institute for Health Services Research.
· Optimising Person Centred Care: Theory, Narrative, Measurement and Implementation
A paper presenting a theory of engagement for person centred care developed with Debra Westlake (Medical School) is in the final stages of preparation. A successful collaboration with Professor Prof Nicky Britten (Exeter) has seen the extension of our GPCC Narrative Project for an extra year. We have published one paper from this project and three others are in preparation. The Mosaic project with Anna Dencker (funded by GPCC) aims to create a state of the art measure of PCC through two interlinked PhDs. My work on the EU wide COST CAREs project led By Professor Inger Ekman (GPCC) is developing policy and guidance for the implementation of Person Centred Care across Europe. I have led the work of the evaluation group, which is due to complete next spring. Two papers outlining our work are near completion and we have identified four possible implementation sites (Poland, Spain, Sweden and Portugal) for future work. Our work has led to policy changes in general practice (QOF scheme) and practice changes to the delivery of health care in the UK, Australia and Europe.
The Health and Psychology of Online Gambling-Gaming:
In addition to the above, I have also begun to develop research in under-researched areas of national and societal importance with colleagues from the University of Wolverhampton (J Lloyd), the medical school (James Close) and the school of Government and Law (Ollie Smith). Our Gamble Aware funded in collaboration with Wolverhampton commenced in December 2019 to explore the relationship between online gaming and gambling and related harms. We have extended this work to investigate how online gaming and interaction with chance based items in children, adolescents and young adults interact with aspects of personality and the strengths and difficulties young people face. We specifically investigate these behaviours in both adults and young people during the COVID-19 pandemic to investigate how this changed online behaviour.
Problematic Internet Use, Body Modification, Identity and Attainment
Over the past year we have witnessed and been part of the increasing digitalisation of our social and occupational worlds. For some this has been welcomed, for others it has been associated with decreases in wellbeing and increases in problematic internet use. Our relationship with the internet, online platforms, games and apps is constantly evolving and the impact of this is poorly understood. Our developing research aims to begin to understand these impacts by testing the utility of integrating neuropsychological, biological and social models to frame our understanding across the life span. The current focus is on the role of the internet in shaping our sense of self subsequent behavioural changes (body modification), and the role of problematic internet use on academic attainment.
Art, Psychology and Creative Recovery:I am also working in collaboration with Dr Sana Murrani on the ‘Creative Recovery: Mapping Refugees’ Memories of Home’ project, funded by the European Cultural Foundation. This project used three-dimensional maps as narrative devices to access memories of home in recently arrived refugees and asylum seekers. Our recently developed Justice and Imagination in Global Displacement (JIGD) collective of multidisciplinary academics deals with global challenges cross-cutting issues of social and spatial displacement (and associated harms), migration, memory and material culture, identity, race and ethnicity. We believe in combining a person-centred approach with a critical in-depth examination of lived experiences and narrative construction. We generate knowledge in the fields of experimental filmmaking and moving image, post-colonial literature, medical anthropology, spatial justice and their methods of practice. The collective is dedicated to collaborative partnerships with marginalised communities locally and globally, to trace, respond to, and inform relevant policy and co-design and develop new forms of practice. We work iteratively using multimodal mixed methods of research that are decolonial, ethnographic, creative, psychological and anthropological. We have existing partnerships through our research consultancies across Higher Education Institutions, government organisations, NGOs and charities.
Research degrees awarded to supervised students
Successful PhD supervision :
A nursing student-led intervention to improve digital health of patients with long-term conditions. Professor Ray Jones (DoS), Dr Helen Lloyd (2nd) and Dr Graham Williamson (3rd). Toni Page (PhD Student). Submitted.currently supervising four PhD students:
A realist evaluation of UK health interventions focused on patients with Multimorbidity: Jose Valderas (Dos), Professor Rob Anderson (2nd), Dr Helen Lloyd (3rd) and Dr Christopher Dickens (4th), Ms Charlotte Bramwell (Phd Student)
PREM-CAT: A Person Centred Patient Reported Experience Measure for people with multiple complex conditions using Computer Adaptive Tests. Professor Anna Dencker (Dos), Helen Lloyd (2nd). University of Gothenburg.
The Experience of Women in Male Dominated Specialist Police Units. Karen Blakemore, Dr Jaysan Charlesford (Dos), Helen Lloyd (2nd).
Grants & contracts
- 2019-2021 J Lloyd, H Lloyd, J Close, T Rayman, O Smith, M. Uther, C Fullwood. Gamble Aware A mixed-method investigation of the gaming/gambling interface and health related harms. UK total grant £300K
- 2018-2021 H Lloyd & A Dencker. University of Gothenburg Centre for Person Centred Care) Methodological solutions to support the Assessment of Individualised Care: The Mosaic Project. £150K
- 2018-20 H Lloyd, N Britten, A Wolf, & O Naldermirici University of Gothenburg Centre for Person Centred Care. Narrative for Person Centred Care. £26K
- 2016-2017 H Lloyd, National Health Service for England (NHSE) Metrics for Person Centred Care: A knowledge Portfolio, Policy and Commissioners Guide £100K
- 2014-2017 H Lloyd & J Close et al. Somerset Clinical Commissioning Group, Academic Health Science Network, NHSE: Somerset System Evaluations; Phase I&II Evaluation of the Somerset Practices Quality Scheme (removal of QOF for Person Centred Care); Test and Learn. 2014-2016. Principal Investigator. £222K
- 2016-2017 H Lloyd South West Academic Health Science Network & PenCLAHRC Research Support/Pump priming, Person Centred Care (P3C).£78K.
- 2016-2018 R Sheaff, R Byng, H Lloyd, J Valderas, M Pearson Funded by NIHR Health Services Delivery Research A Realist Review of Multi-Specialty Teams. £100K.
- 2016-2017 R Lillford, R Byng, F Griffiths, H Lloyd, Co-applicant. NIHR Programme Development Grant led by Education and facilitation to improve clinical decisions and multidisciplinary team working with older adults with multimorbidity. 2016. £100
- 2016-2017 H Lloyd. Academic Health Science Network for NHSE. An Evaluation of the SW Integrated Person Commissioning Pilot (IPC). £170K
- 2014-2015 H Lloyd South Devon and Torbay Joined Up Board. A Formative Evaluation of South Devon and Torbay’s Pioneer Hubs. £70K
Creative practice & artistic projects
Creative Recovery: Mapping Refugees’ Memories of Home as Heritage is one of just 31 projects awarded a grant from the European Cultural Foundation‘s Courageous Citizens 2018 programme, out of more than 500 applications from across the world. The project is led by Associate Professor (Spatial Practice) and the founder of the Displacement Studies Research Network, Dr Sana Murrani from the University of Plymouth in partnership with the British Red Cross, Plymouth branch. Part of the project was funded by the University of Plymouth’s Sustainable Earth Institute under the Creative Associate scheme 2019. Photojournalist Carey Marks of Scarlet Design was supported by this fund.
Key publications are highlightedJournals
Reports & invited lectures
Lloyd, H (2017). Implementing Person Centred Care. EuroHeart. Jonkoping. Sweden. Presenter and Panel member.
Lloyd, H (2017). Masterclass: From Principles to Action for Person Centred Coordinated Care (P3C). College of Nursing, University College Dublin.
Lloyd, H. (2016). Measuring What Matters: embedding the patient voice in person centred redesign. CARE+. London July. Presenter.
Lloyd, H and Horrell, J (2016). The Development of the Organisational Change Tool for Person Centred Primary Care. 3rd International Primary Care Reform Conference. Brisbane, Australia. Presenter.
Lloyd, H (2016). Integrating Service Design, Evaluation and Research: A Strategy to Improve Person Centred and Coordinated Care: SWAHSN New Models of Care Conference. Exeter. Presenter.
Lloyd, H (2016). Logic Models: AHSN New Models of Care Conference. Exeter. Presenter.
Lloyd, H (2016). Integrating Service Design, Evaluation and Research: A Strategy to Improve Person Centred and Coordinated Care: SWAHSN New Models of Care Conference. Exeter University Apex Seminar. Presenter.
- November 2017 - Plymouth University Workforce and Primary Care Conference. Development, strategic planning/organisation and delivery.
- March 2018 - South West Society for Academic Primary Care Organisation and planning, peer review, and delivery.
Other academic activities
- ‘UK Gender Politics: Where Are We Now?” Joint Psych in the Pub event with BPS Southwest Branch. 20th September 2019.