The SWIMS project

The SWIMS Project collects information on how multiple sclerosis (MS) and clinically isolated syndromes (CIS) affect people over the course of time.

The information is collected directly from people with MS or CIS, or from a carer, using specially designed questionnaire booklets (postal or online). We ask about a wide range of health related matters, allowing us to build a unique resource of peoples' experiences of MS. This resource is useful in many ways:

  • It helps us understand the impact of MS and CIS from the point of view of the people affected.
  • We want to find better ways of measuring change in a person's condition over time. Good measurement tools can help to make clinical trials of new treatments shorter, less expensive and more effective.
  • We plan to develop a method to predict the future impact of MS and CIS for any given individual.

Management

Professor Jeremy Hobart is the Chief Investigator of the study. The SWIMS project team, who are responsible for the day-to-day running of the project, are based at the Plymouth University Peninsula Schools of Medicine and Dentistry (PUPSMD) in Plymouth, Devon. The University of Plymouth owns the data contributed by participants for the SWIMS project.

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